• Skip to primary navigation
  • Skip to main content
  • Skip to primary navigation
  • Skip to main content
Choose which site to search.
University of Arkansas for Medical Sciences Logo University of Arkansas for Medical Sciences
College of Medicine: Department of Biomedical Informatics
  • UAMS Health
  • Jobs
  • Giving
  • About Us
    • Employment
    • News
    • Links
    • Department Intranet
  • Faculty
    • Primary Faculty
    • Secondary Faculty
    • Adjunct Faculty
  • Staff
  • Education
    • Admission Information
    • Student Funding Opportunities
    • Graduate Programs
    • Current Course Offerings
    • DBMI FAQs
    • Research & Application Seminar
    • Recorded Sessions for CME Credit
  • INBRE
    • INBRE Bioinformatics Core Support Request Form
  • Research Labs
    • Publications
    • Arkansas Center for Genomic & Ecological Medicine (ArC-GEM)
    • Arkansas Clinical Data Repository (AR-CDR)
    • Biomedical Ontologies Arkansas (BOAR)
  • Clinical Informatics Fellowship
    • Fellowship Overview
    • Training Sites
    • Faculty
    • Current Fellows
    • Welcome to Little Rock!
  • Databases
  • Diversity, Equity, and Inclusion
    • About DBMI-DEI
    • DBMI-DEI Committee Members
    • DBMI-DEI Resources
    • DBMI-DEI Committee Events
  1. University of Arkansas for Medical Sciences
  2. College of Medicine
  3. Department of Biomedical Informatics
  4. Databases

Databases

NameCategoriesDescriptionPublisherScope
Arkansas Health Data Initiative (HDI)Arkansas All-Payer Claims Database (APCD).
View Details...

The Arkansas Center for Health Improvement (ACHI) was formed in 1998 as an innovative solution to the health crisis faced by Arkansas. ACHI’s transformation of data into an evidence base for policy decision making is a central component of our health policy and program development. The Arkansas Health Data Initiative (HDI) is a comprehensive system that integrates data sets from a variety of state and national sources providing a unique ability to synthesize key pieces of information previously held separately. Research using these data informs a comprehensive understanding of health and identifies optimal opportunities for the continued improvement of our public systems. The systematic integration of information from across disparate sources provides peripheral vision to programs typically operating in silos and amplifies the ability of each partner involved to identify common resources and potential new partnerships. This unique capacity also allows Arkansas to recruit state-of-the-art researchers to work with us to find answers to pressing health concerns.

Arkansas Center for Health Improvement (ACHI)Arkansas
Arkansas Reproductive Health Monitoring System (ARHMS)Arkansas Center for Birth Defects Research and Prevention
View Details...

Arkansas Reproductive Health Monitoring System (ARHMS) monitors and collects data on birth defects throughout the state. ARHMS supports the activities of the Arkansas Center for Birth Defects Research and Prevention by serving as an experienced and timely data collecting system and reporting prevalence trends in the state. As an active health surveillance system, ARHMS Health Information Specialists visit 83 hospitals in Arkansas and regional hospitals that provide obstetrical or pediatric care for case identification and abstraction. All AHRMS cases are abstracted from hospital records and only cases diagnosed by physicians are included in the registry. In addition, ARHMS also detects trends in birth defects.

Arkansas Reproductive Health Monitoring System (ARHMS) [Arkansas Center for Birth Defects Research and Prevention]Arkansas
Census DataAmerican Community Survey [US Census Bureau]
View Details...

The American Community Survey (ACS) is an ongoing statistical survey that samples a small percentage of the population every year -- giving communities the information they need to plan investments and services.

American Community Survey [US Census Bureau]National
Census Data Access Tools - Main Page [US Census Bureau]
View Details...

The U.S. Census counts every resident in the United States. It is mandated by Article I, Section 2 of the Constitution and takes place every 10 years. The data collected by the decennial census determine the number of seats each state has in the U.S. House of Representatives and is also used to distribute billions in federal funds to local communities.

Census Data - U.S. Census BureauNational
Demographic Surveys [US Census Bureau]
View Details...

The U.S. Census Bureau compiles information from household surveys to produce statistics that describe populations and their characteristics, such as age, education, housing and income. The US Census Bureau collects this data by asking household members to provide information about the people who live in the house, apartment, mobile home or group housing. When the data are processed, all personally identifiable information is removed so no person or household is recognizable. The combined data yield general facts and figures such as the number of people with a high school diploma in a given state. People and businesses then use these statistics to study trends, reach conclusions, and make informed decisions.

Demographic Surveys [US Census Bureau]National
Economic Census [US Census Bureau]
View Details...

The economic census provides a detailed portrait of the United States' economy once every five years, from the national to the local level. The 2007 Economic Census covers most of the U.S. economy in its basic collection of establishment statistics. There also are several related programs, including statistics on minority- and women-owned businesses. Censuses of agriculture and governments are conducted at the same time. Results from the 2007 Economic Census were released on American FactFinder (http://factfinder2.census.gov/faces/nav/jsf/pages/searchresults.xhtml?refresh=t), starting in early 2009 and continued through mid 2011.

Economic Census [US Census Bureau]National
Decennial Census of Population and Housing by Decades [US Census Bureau]
View Details...

Every 10 years, the U.S. Census Bureau conducts a census to determine the number of people living in the United States. The U.S. Census Bureau conducts the census in years ending in zero, on Census Day, which is April 1. The data collected by the decennial census are used to apportion the number of seats each state has in the U.S. House of Representatives. The first U.S. census was in 1790 during the first term of our first president, George Washington. Secretary of State Thomas Jefferson led the effort. The population was 3,929,625, and Congress used these results to apportion 105 seats among 15 states.

Population & Housing Census [US Census Bureau]National
U.S. Census of Population and Housing Public Use Microdata Samples (PUMS)
View Details...

The American Community Survey (ACS) Public Use Microdata Sample (PUMS) files are a set of untabulated records about individual people or housing units. Supporting documentation for the data below is available on the PUMS Documentation page. To learn more, visit our PUMS Handbook. PUMS files on the File Transfer Protocol (FTP) site are available in CSV and SAS formats. PUMS data prior to 2005 can also be found on our FTP site. Microdata access from 2005-current is available on data.census.gov.

U.S. Census BureauNational
US census data -- full count - short form (SF1,SF2)
View Details...

The official U.S. Census is an actual enumeration of the people every ten years, generally on April 1 in years ending in a zero. A limited number of questions were asked of every person and housing unit in the United States. Information is available on: age, Hispanic or Latino origin, household relationship, race, sex, tenure (whether the home is owned or rented), vacancy characteristics. Census data can be linked to other datasets, for example to obtain median income for each U.S. zip code.

U.S. Census BureauNational
Arkansas Census Data
View Details...

The Census State Data Center (CSDC) assists the Census Bureau in promoting the decennial census but its main responsibility is one of dissemination. The Center receives all the Arkansas census information produced in various formats, produces user-friendly products, and disseminates the information to data users throughout the state through a variety of media. In addition to data dissemination, the CSDC provides technical assistance in the understanding and application of the census information.

Arkansas Census DataNational Arkansas
American FactFinder [US Census Bureau]
View Details...

American FactFinder provides access to data about the United States, Puerto Rico and the Island Areas. The data in American FactFinder come from several censuses and surveys.

American FactFinder [US Census Bureau] National
Survey of Income and Program Participation
View Details...

The main objective of the SIPP is to provide accurate and comprehensive information about the income of American individuals and households and the participation of these people in income transfer programs. This survey collects information on participation in public assistance programs, such as SNAP (food stamps), TANF (welfare), and WIC.  It also collects information on poverty, income, employment, and health insurance coverage.

U.S. Census BureauNational
Current Population SurveyCurrent Population Survey (CPS)
View Details...

The Current Population Survey (CPS) is a monthly survey of about 50,000 households conducted by the Bureau of the Census for the Bureau of Labor Statistics. The CPS is the primary source of information on the labor force characteristics of the U.S. population. The sample is scientifically selected to represent the civilian non-institutional population. Respondents are interviewed to obtain information about the employment status of each member of the household 15 years of age and older. The sample provides estimates for the nation as a whole and provides data used to obtain model-based estimates for individual states and other geographic areas.

U.S. Department of LaborNational
Chronic Condition Data WarehouseChronic Condition Data Warehouse (CCW)
View Details...

The CMS Chronic Conditions Data Warehouse (CCW) provides researchers with Medicare and Medicaid beneficiary, claims, and assessment data linked by beneficiary across the continuum of care. In the past, researchers analyzing data files were required to perform extensive analysis related to beneficiary matching, deduplication, and merging of the files in preparation for their study analysis. With the CCW data, this preliminary linkage work is already accomplished and delivered as part of the data files sent to researchers. The Chronic Conditions Data Warehouse (CCW) is a research database designed to make Medicare, Medicaid, Assessments, and Part D Prescription Drug Event data more readily available to support research designed to improve the quality of care and reduce costs and utilization.

Centers for Medicare & Medicaid Services (CMS)National
Health Care Cost and Utilization ProjectState Emergency Department Databases (HCUP-SEDD)
View Details...

The State Emergency Department Databases (SEDD), from data organizations in participating States, capture discharge information on all emergency department visits that do not result in an admission. Information on patients initially seen in the emergency room and then admitted to the hospital is included in the State Inpatient Databases (SID).

Agency for Healthcare Research and Quality (AHRQ)National
State Inpatient Databases (HCUP-SID)
View Details...

The State Inpatient Databases (SID) contain the universe of the inpatient discharge abstracts in participating States, translated into a uniform format to facilitate multi-State comparisons and analyses. Together, the SID encompass about 90 percent of all U.S. community hospital discharges. Some States include discharges from specialty facilities, such as acute psychiatric hospitals. The SID contain a core set of clinical and nonclinical information on all patients, regardless of payer, including persons covered by Medicare, Medicaid, private insurance, and the uninsured. In addition to the core set of uniform data elements common to all SID, some include other elements, such as the patient's race.

Agency for Healthcare Research and Quality (AHRQ)National
Kids Inpatient Databases (HCUP-KID)
View Details...

The Kids' Inpatient Database (KID) is of the only all-payer database on hospital inpatient stays for children in the United States. The latest edition of the KID (2009) contains data drawn from 44 State Inpatient Databases on discharges of children 20 years of age and younger. The KID was specifically designed to permit researchers to study a broad range of conditions and procedures related to child health issues. The KID contains clinical and resource use information included in a typical hospital discharge abstract. Researchers and policymakers can use the KID to identify, track, and analyze national trends in health care utilization, access, charges, quality, and outcomes. Identifying information about hospitals is available in states that make this information public and can be used to link the KID to the American Hospital Association Annual Survey database.

Agency for Healthcare Research and Quality (AHRQ)National
Nationwide Emergency Department Sample (HCUP-NEDS)
View Details...

The Nationwide Emergency Department Sample (NEDS) is national estimates of emergency department (ED) visits which approximates a 20-percent stratified sample of U.S. hospital-based EDs. The NEDS contains clinical and resource use information included in a typical discharge abstract. The NEDS can be weighted to produce national estimates.

Agency for Healthcare Research and Quality (AHRQ)National
Nationwide Inpatient Sample (HCUP-NIS)
View Details...

The Nationwide Inpatient Sample (NIS) can be used to identify, track, and analyze national trends in health care utilization, access, charges, quality, and outcomes. The NIS is the only national hospital database containing charge information on all patients, regardless of payer, including persons covered by Medicare, Medicaid, private insurance, and the uninsured. For most States, the NIS includes hospital identifiers that permit linkages to the American Hospital Association (AHA) Annual Survey Database (Health Forum, LLC © 2010) and county identifiers that permit linkages to the Area Resource File.

Agency for Healthcare Research and Quality (AHRQ)National
The Nationwide Readmissions Database (NRD)
View Details...

The Nationwide Readmissions Database (NRD) is a unique and powerful database designed to support various types of analyses of national readmission rates for all patients regardless of the expected payer for the hospital stay. The NRD includes discharges for patients with and without repeat hospital visits in a year and those who have died in the hospital. Repeat stays may or may not be related. The criteria to determine the relationship between hospital admissions is left to the analyst using the NRD. This database addresses a large gap in healthcare data - the lack of nationally representative information on hospital readmissions for all ages.

Agency for Healthcare Research and Quality (AHRQ)National
The State Ambulatory Surgery and Services Databases (SASD)
View Details...

The State Ambulatory Surgery and Services Databases (SASD) are State-specific files that include data for ambulatory surgery and other outpatient services from hospital-owned facilities. In addition, some States provide ambulatory surgery and outpatient services from nonhospital-owned facilities. The uniform format of the SASD helps facilitate cross-State comparisons. The SASD are well suited for research that requires complete enumeration of hospital-based ambulatory surgeries within geographic areas or States.

Agency for Healthcare Research and Quality (AHRQ)National
The Nationwide Ambulatory Surgery Sample (NASS)
View Details...

The largest all-payer ambulatory surgery database in the United States, the Nationwide Ambulatory Surgery Sample (NASS) produces national estimates of major ambulatory surgery encounters in hospital-owned facilities. The NASS contains clinical and resource-use information that is included in a typical hospital-owned facility record, including patient characteristics, clinical diagnostic and surgical procedure codes, disposition of patients, total charges, expected source of payment, and facility characteristics.

Agency for Healthcare Research and Quality (AHRQ)National
Medical Expenditure Panel Survey (MEPS)
View Details...

The Medical Expenditure Panel Survey (MEPS) is a set of large-scale surveys of families and individuals, their medical providers, and employers across the United States. MEPS is the most complete source of data on the cost and use of health care and health insurance coverage.

The Medical Expenditure Panel Survey (MEPS), which began in 1996, is a set of large-scale surveys of families and individuals, their medical providers (doctors, hospitals, pharmacies, etc.), and employers across the United States. MEPS collects data on the specific health services that Americans use, how frequently they use them, the cost of these services, and how they are paid for, as well as data on the cost, scope, and breadth of health insurance held by and available to U.S. workers.

MEPS currently has two major components: the Household Component (http://meps.ahrq.gov/mepsweb/survey_comp/household.jsp) and the Insurance Component (http://meps.ahrq.gov/mepsweb/survey_comp/Insurance.jsp). The Household Component provides data from individual households and their members, which is supplemented by data from their medical providers. The Insurance Component is a separate survey of employers that provides data on employer-based health insurance.

Agency for Healthcare Research and Quality (AHRQ)National
Centers for Medicare and Medicaid Services (CMS)Home Health Outcome and Assessment Information Set (OASIS)
View Details...

Since 1999, CMS has required Medicare-certified home health agencies to use the Outcome and Assessment Information Set (OASIS) to collect and transmit data about all adult patients whose care is reimbursed by Medicare and Medicaid with the exception of patients receiving pre- or postnatal services only. Beginning in January 2010, home health agencies have been required to collect a revised version of the OASIS data set (OASIS-C) OASIS-C includes data items supporting measurement of rates for use of specific evidence-based care processes. Medicare covers part-time, medically necessary skilled care (nursing, physical therapy, occupational therapy, and speech-language therapy) and medical supplies that are ordered by a physician under the Part A benefit. In all states, Medicaid covers nursing care, home health aide services, medical supplies, equipment, and appliances. Some states cover additional, optional services.

Centers for Medicare & Medicaid Services (CMS)National
Medicaid Research Identifiable Files
View Details...

The Centers for Medicare & Medicaid Services (CMS) makes identifiable data files (IDFs) available to certain stakeholders as allowed by federal laws and regulations as well as CMS policy. IDFs contain protected health information (PHI) and/or personally identifiable information (PII) and CMS is committed to ensuring this information is protected.

Centers for Medicare & Medicaid Services (CMS)National
Medicare Cost Reports
View Details...

The Centers for Medicare & Medicaid Services (CMS) has made a reasonable effort to ensure that the provided data/records/reports are up-to-date, accurate, complete, and comprehensive at the time of disclosure. This information reflects data as reported to the Healthcare Cost Report Information System (HCRIS). These reports are a true and accurate representation of the data on file at CMS. Authenticated information is only accurate as of the point in time of validation and verification. CMS is not responsible for data that is misrepresented, misinterpreted or altered in any way. Derived conclusions and analysis generated from this data are not to be considered attributable to CMS or HCRIS.

Centers for Medicare & Medicaid Services (CMS)National
Medicare Inpatient Rehabilitation Facility Patient Assessment Instrument (IRF-PAI)
View Details...

The Medicare Inpatient Rehabilitation Facility Patient Assessment Instrument (IRF-PAI) contains data items that were developed primarily for Medicare's prospective payment system (PPS) for IRFs. IRF-PAI assessments are performed for all Medicare beneficiaries receiving fee-for-service benefits who are admitted to an IRF-PAI. Two IRF-PAI assessments are collected for each Medicare inpatient rehab facility stay, one at admission and one at discharge. IRF-PAI data items address the physical, cognitive, functional, and psychosocial status of patients. IRF-PAI information includes the following clinical items and case mix adjusters: Patient History, Social Cognition, Functional Status, Bowel/Bladder Management, Diagnoses, Medical Complexities, Pain Status, Oral/Nutrition Status, Functional Prognosis, Safety, and Resources for Discharge.

Centers for Medicare & Medicaid Services (CMS)National
Medicare Provider Utilization and Payment Data: Physician and Other Supplier
View Details...

The Centers for Medicare & Medicaid Services (CMS) has prepared a public data set, the Medicare Provider Utilization and Payment Data: Physician and Other Supplier Public Use File (Physician and Other Supplier PUF), with information on services and procedures provided to Medicare beneficiaries by physicians and other healthcare professionals. The Physician and Other Supplier PUF contains information on utilization, payment (allowed amount and Medicare payment), and submitted charges organized by National Provider Identifier (NPI), Healthcare Common Procedure Coding System (HCPCS) code, and place of service. This PUF is based on information from CMS’s National Claims History Standard Analytic Files. The data in the Physician and Other Supplier PUF covers calendar year 2012 and contains 100% final-action physician/supplier Part B non-institutional line items for the Medicare fee-for-service population.

Centers for Medicare & Medicaid Services (CMS)National
Medicare Research Identifiable Files
View Details...

The Medicare Research Identifiable Files (RIFs) contain person-specific data on Medicare providers, beneficiaries, and recipients including individual identifiers that would permit the identity of a beneficiary or physician to be deduced (e.g., date of birth, age, race, sex, residence information). Five types of Medicare RIFS are available.

Centers for Medicare & Medicaid Services (CMS)National
Optum DataOptum oncology EHR data
View Details...

Optum oncology EHR data enables life sciences companies to gain deeper insight into the natural history of disease, comorbidities, cancer diagnosis and treatment with a full view of patient care and reimbursement. Teams are empowered to conduct the analyses needed — from discovery to commercialization — using a single dataset to demonstrate the value of their product.

OptumInsight (formally Ingenix)National
Optum EHR Clinical Data
View Details...

EHR Clinical Data: We aggregate EHR data directly from providers, integrating multiple EHRs from across the continuum of care, both inpatient and ambulatory. We capture a comprehensive clinical picture that includes medications, lab results, vital signs, physician notes, diagnoses, procedures, demographics, hospitalizations and outpatient visits. Optum Humedica NorthStarTM provides a longitudinal view of population care, which allows you to quickly develop and modify brand and commercial strategies, measure comparative effectiveness and provide forecasting metrics.

OptumInsight (formally Ingenix)National
Optum Claims Data
View Details...

Mining the right data is essential to understanding brand performance — both yours and that of competitors. Optum® Clinformatics® Data Mart offers more richly detailed longitudinal information — faster — than any other product on the market.With this powerful data set, you'll have the information you need right at your fingertips to perform analysis critical to your organization business goals and product development.

Optum Claims DataNational
Optum Market Clarity Data
View Details...

Succeeding in today's highly competitive and regulated health care market requires refined insights that help optimize business strategies and market tactics. Traditional "accurate enough" data matched using probabilistic methods do not meet this need. Optum "precision" data is a rich data set that deterministically links medical and pharmacy claims with robust EHR data on more than 30 million unique lives. We know the origins of our data, and we use unique identifiers to provide validated, linked patient journeys that are continuously updated.

Optum Market Clarity DataNational
Clinformatics for Managed Markets
View Details...

Optum® Clinformatics® for Managed Markets is a zero-footprint, online tool built on the Optum proprietary data warehouse — a patient longitudinal database of eligibility, medical claims and prescription claims data for a large national insurer — to give sponsors a deeper, more refined understanding of what’s happening in the market for their product. By going beyond traditional single-dimensional, transaction-based analytic measures, such as prescription volumes and market share metrics, Clinformatics for Managed Markets can help you segment and target more precisely, measure more appropriately and grow faster with less effort.

Clinformatics for Managed MarketsNational
TRI - CERIMS Lifelink Pharmetrics Plus
View Details...

The IMS LifeLink PharMetrics Plus™ database is comprised of commercial health plan information from managed care plans throughout the United States, with adjudicated claims of more than 150 million unique enrollees since 2006. TRI has obtained a multi-user data use agreement to access a random 10 percent sample that contains records for over 8 million individuals.

TRI - CER: IMS PharMetrics LifeLink Health ClaimsNational
National Institute on Alcohol Abuse and Alcoholism (NIAAA)Alcohol Epidemiologic Data Directory [National Institutes of Health (NIH) - National Institute on Alcohol Abuse and Alcoholism (NIAAA)]
View Details...

This Directory is a current listing of surveys and other relevant data suitable for epidemiologic research on alcohol. Some surveys included in the Directory are designed specifically to answer alcohol-related questions. Other surveys may address other issues but still contain alcohol-related data. The first section of the Directory includes data sets that are representative of the overall U.S. population, although many use different age categories in the sample design. The second section includes data sets on special populations (e.g., adolescents, prison inmates, military personnel, older Americans, and specific racial or ethnic groups). A final section describes publications and other research products available from AEDS. It is important to note that this Directory is not a comprehensive listing of all data sets that are available to alcoholism professionals. Many small-scale surveys, such as single-state surveys and local area surveys, are excluded, as are data sets that are not available to the public.

Alcohol Epidemiologic Data Directory [National Institutes of Health (NIH) - National Institute on Alcohol Abuse and Alcoholism (NIAAA)]National
Surveillance Epidemiology and End ResultsSurveillance Epidemiology and End Results (SEER) Public-Use Data
View Details...

The Surveillance, Epidemiology, and End Results (SEER) Program of the National Cancer Institute (NCI) collects data on cancer incidence and survival from population-based cancer registries throughout the United States. Three databases link SEER data to other sources of data on persons with cancer.

1) The SEER-Medicare Linked Database combines data from SEER with claims data on use of health care services by Medicare beneficiaries. (http://healthservices.cancer.gov/seermedicare/)
2) The SEER-Medicare Health Outcomes Survey Linked Database combines data from SEER with information from the Medicare Health Outcomes Survey (MHOS) about the health-related quality of life (HRQOL) of Medicare beneficiaries enrolled in Medicare Advantage Organizations. (http://outcomes.cancer.gov/surveys/seer-mhos/)
3) The SEER-National Longitudinal Mortality Study Linked Database combines data from SEER with data from the National Longitudinal Mortality Study (NLMS). (http://surveillance.cancer.gov/disparities/nlms/).

NIH National Cancer Institute (NCI)National
US Mortality dataMortality data from the National Vital Statistics System (NVSS)
View Details...

Mortality data from the National Vital Statistics System (NVSS) (http://www.cdc.gov/nchs/deaths.htm) are a fundamental source of demographic, geographic, and cause-of-death information.  This is one of the few sources of health-related data that are comparable for small geographic areas and are available for a long time period in the United States.  The data are also used to present the characteristics of those dying in the United States, to determine life expectancy, and to compare mortality trends with other countries.

Researchers interested in tracking mortality of individual persons (e.g., persons with a specific disease, persons who received a specific procedure) should consult the National Death Index (http://www.cdc.gov/nchs/ndi.htm).

CDC National Center for Health StatisticsNational
Multiple States
California
Behavioral Risk Factor Surveillance System ACE DataBehavioral Risk Factor Surveillance System
View Details...

The Behavioral Risk Factor Surveillance System (BRFSS) is the nation’s premier system of health-related telephone surveys that collect state data about U.S. residents regarding their health-related risk behaviors, chronic health conditions, and use of preventive services. Established in 1984 with 15 states, BRFSS now collects data in all 50 states as well as the District of Columbia and three U.S. territories. BRFSS completes more than 400,000 adult interviews each year, making it the largest continuously conducted health survey system in the world./p>

Centers for Disease Control and Prevention (CDC)National
Multiple States
Pregnancy Risk Assessment Monitoring System,CDC's Pregnancy Risk Assessment Monitoring System (PRAMS) On-line Data for Epidemiologic Research (CPONDER) [US Centers for Disease Control and Prevention (CDC) - Arkansas Department of Health (ADH)]
View Details...

PRAMS, the Pregnancy Risk Assessment Monitoring System, is a surveillance project of the Centers for Disease Control and Prevention (CDC) and state health departments. PRAMS collects state-specific, population-based data on maternal attitudes and experiences before, during, and shortly after pregnancy.

Pregnancy Risk Assessment Monitoring System (PRAMS)U.S. (40 states & New York City)
The Dartmouth Atlas of Health CareDartmouth Atlas of Health care
View Details...

For more than 20 years, the Dartmouth Atlas Project has documented glaring variations in how medical resources are distributed and used in the United States. The project uses Medicare data to provide comprehensive information and analysis about national, regional, and local markets, as well as individual hospitals and their affiliated physicians.

This web site provides access to all Atlas reports and publications, as well as interactive tools to allow visitors to view specific regions and perform their own comparisons and analyses. These tools have helped other groups create reports like those listed on our Case Studies page (http://www.dartmouthatlas.org/tools/casestudies.aspx). A selection of videos and presentations can be found on our Multimedia page (http://www.dartmouthatlas.org/pages/multimedia).

The Dartmouth Atlas of Health CareNational
National Health and Aging Trends StudyNational Health and Aging Trends Study (NHATS)
View Details...

Begun in 2011, the National Health and Aging Trends Study (NHATS) gathers information on a nationally representative sample of Medicare beneficiaries ages 65 and older. Annual, in-person interviews collect detailed information on the disablement process and its consequences. The sample is refreshed periodically so that researchers may study national-level disability trends as well as individual trajectories. A last month of life interview focuses on quality of end of life care. Periodically caregivers of NHATS respondents are interviewed in the supplemental National Study of Caregiving (NSOC). Linkages to Medicare records are also available.

National Health & Aging Trends Study (NHATS)National
National Center for Health Statistics (NCHS)National Health and Nutrition Examination Survey (HHANES)
View Details...

The National Health and Nutrition Examination Survey (NHANES) is a program of studies designed to assess the health and nutritional status of adults and children in the United States. The survey is unique in that it combines interviews and physical examinations. NHANES is a major program of the National Center for Health Statistics (NCHS). NCHS is part of the Centers for Disease Control and Prevention (CDC) and has the responsibility for producing vital and health statistics for the Nation.

CDC National Center for Health StatisticsNational
National Health Interview Survey (NHIS)
View Details...

The National Health Interview Survey (NHIS) has monitored the health of the nation since 1957. NHIS is a a cross-sectional household interview survey that is administered annually to approximately 87,500 persons in approximately 35,000 households. The sample is drawn from each of the 50 states and the District of Columbia.

CDC National Center for Health StatisticsNational
The National Survey of Family Growth (NSFG)
View Details...

The National Survey of Family Growth (NSFG)The National Survey of Family Growth (NSFG) gathers information on family life, marriage and divorce, pregnancy, infertility, use of contraception, and men’s and women’s health. The survey results are used by the U.S. Department of Health and Human Services and others to plan health services and health education programs, and to do statistical studies of families, fertility, and health.

CDC National Center for Health StatisticsNational
National Hospital Ambulatory Medical Care Survey (NHAMCS)
View Details...

The National Hospital Ambulatory Medical Care Survey (NHAMCS) is designed to collect data on the utilization and provision of ambulatory care services in hospital emergency and outpatient departments. Data are obtained on demographic characteristics of patients, expected source(s) of payment, patients' complaints, diagnoses, diagnostic/screening services, procedures, medication therapy, disposition, types of providers seen, causes of injury (emergency department and ambulatory surgery center only), and certain characteristics of the facility, such as, geographic region and metropolitan status.

CDC National Center for Health StatisticsNational
The Third National Health and Nutrition Examination Survey (NHANES III)
View Details...

The Third National Health and Nutrition Examination Survey (NHANES III), 1988-94, is of primary interest to researchers interested in analyzing historical data on demographic, socioeconomic, dietary, and health-related questions and medical, dental, and physiological measurements. More current data on these topics is available from the ongoing NHANES survey.

CDC National Center for Health StatisticsNational
National Home and Hospice Care Survey (NHHCS)
View Details...

The National Home and Hospice Care Survey (NHHCS) is a continuing series of nationally representative sample surveys of home and hospice care agencies in the United States. Information is collected about agencies that provide descriptive information on home and hospice care and about their current patients and discharges, their services, and their staff. Data are collected on referral and length of service, diagnoses, number of visits, patient charges, health status, reason for discharge, and types of services provided.

CDC National Center for Health StatisticsNational
National Home Health Aide Survey (NHHAS)
View Details...

The National Home Health Aide Survey (NHHAS), the first national probability survey of home health aides, was designed to provide national estimates of home health aides employed by agencies that provide home health and/or hospice care. NHHAS, a multistage probability sample survey, was conducted as a supplement to the 2007 CDC Home National Home and Hospice Care Survey (NHHCS).

CDC National Center for Health StatisticsNational
National Hospital Ambulatory Medical Care Survey (NHAMCS)
View Details...

The National Hospital Ambulatory Medical Care Survey (NHAMCS) is designed to collect data on the utilization and provision of ambulatory care services in hospital emergency and outpatient departments. Data are obtained on demographic characteristics of patients, expected source(s) of payment, patients' complaints, diagnoses, diagnostic/screening services, procedures, medication therapy, disposition, types of providers seen, causes of injury (emergency department and ambulatory surgery center only), and certain characteristics of the facility, such as, geographic region and metropolitan status.

CDC National Center for Health StatisticsNational
National Hospital Care Survey (NHCS) [US Centers for Disease Control and Prevention (CDC)]
View Details...

The National Hospital Care Survey (NHCS) is designed to provide accurate and reliable health care statistics that answer key questions of interest to health care and public health professionals, researchers and health care policy makers. This includes tracking the latest trends affecting hospitals and health care organizations and factors that influence the use of health care resources, the quality of health care and disparities in health care services provided to population subgroups in the United States.

This new survey integrates inpatient data formerly collected by the National Hospital Discharge Survey (NHDS) (http://www.cdc.gov/nchs/nhds.htm) with the emergency department (ED), outpatient department (OPD), hospital-based ambulatory surgery location (ASL), and freestanding ambulatory surgery center (ASC) data collected by the National Hospital Ambulatory Medical Care Survey (NHAMCS) (http://www.cdc.gov/nchs/ahcd.htm). The integration of these two surveys allows examination of care provided across treatment settings. It will also be possible to link the survey data to the National Death Index (http://www.cdc.gov/nchs/ndi.htm) and the Medicare Provider Analysis and ReviewExternal Web Site Icon (MedPAR) (https://www.cms.gov/Research-Statistics-Data-and-Systems/Files-for-Order/IdentifiableDataFiles/index.html) and Medicaid Statistical Information SystemExternal Web Site Icon (MSIS) (https://www.cms.gov/Research-Statistics-Data-and-Systems/Computer-Data-and-Systems/MSIS/index.html?redirect=/MSIS/) datasets to obtain a more complete picture of patient care.

National Center for Health Statistics [US Centers for Disease Control and Prevention (CDC)]National
National Hospital Discharge Survey (NHDS)
View Details...

The National Hospital Discharge Survey (NHDS), which was conducted annually from 1965-2010, was a national probability survey designed to meet the need for information on characteristics of inpatients discharged from non-Federal short-stay hospitals in the United States.

CDC National Center for Health StatisticsNational
National Immunization Survey (NIS)
View Details...

Since 1994, the National Immunization Survey (NIS), conducted by the National Center for Immunizations and Respiratory Diseases and the National Center for Health Statistics of the Centers for Disease Control and Prevention (CDC), has provided the public with important statistics about childhood immunization and related health matters.

CDC National Center for Health StatisticsNational
National Maternal and Infant Health Survey (NMIHS)
View Details...

The objective of the National Maternal and Infant Health Survey (NMIHS) was to collect data needed by Federal, State, and private researchers to study factors related to poor pregnancy outcomes, including low birthweight, stillbirth, infant illness, and infant death. The NMIHS was a followback survey -- it followed back to informants named on vital records.

Earlier studies about maternal and infant health were the National Natality Surveys, conducted in 1963, 1964-66, 1968-69, 1972, and 1980. A National Fetal Mortality Survey was done in 1980, and a National Infant Mortality Survey was conducted in 1964-66. Published findings appear in Vital and Health Statistics, Series 22 (http://www.cdc.gov/nchs/products/series/series22.htm).

CDC National Center for Health StatisticsNational
National Nursing Assistant Survey (NNAS)
View Details...

The National Nursing Assistant Survey (NNAS) is the first national study of nursing assistants working in nursing facilities in the United States. The NNAS will look at the important role of nursing assistants in providing long-term care services for the growing elderly and chronically ill population.

The NNAS, part of the National Nursing Home Survey, will provide new information needed to recruit, retain, and expand paraprofessional long-term care workforce. The survey will help identify nursing assistants priorities, ways to meet those priorities, and how to prevent staffing shortages in the future.

CDC National Center for Health StatisticsNational
National Nursing Home Survey (NNHS)
View Details...

The National Nursing Home Survey (NNHS) is a continuing series of national sample surveys of nursing homes, their residents, and their staff. Although each of these surveys emphasized different topics, they all provided some common basic information about nursing homes, their residents, and their staff. All nursing homes included in this survey had at least three beds and were either certified (by Medicare or Medicaid) or had a state license to operate as a nursing home.

CDC National Center for Health StatisticsNational
National School-Based Youth Risk Behavior Survey (YRBS)
View Details...

The CDC’s YRBSS is the only surveillance system designed to monitor a wide range of priority health risk behaviors among representative samples of high school students at the national, state, and local levels.

National, state, and large urban school district surveys are conducted every two years among high school students throughout the United States. These surveys monitor priority health risk behaviors including unintentional injuries and violence; tobacco, alcohol, and other drug use; sexual behaviors that contribute to unintended pregnancy and sexually transmitted diseases, including HIV infection; unhealthy dietary behaviors; and physical inactivity. These surveys also monitor obesity and asthma among students.

Centers for Disease Control and Prevention (CDC)National
National Study of Long-Term Care Providers (NSLTCP) [US Centers for Disease Control and Prevention (CDC)]
View Details...

The biennial National Study of Long-Term Care Providers (NSLTCP), sponsored by the U.S. Centers for Disease Control and Prevention’s National Center for Health Statistics (NCHS), is a groundbreaking initiative to monitor trends in the major sectors of paid, regulated long-term care services providers. NSLTCP includes adult day services centers, home health agencies, hospices, nursing homes, and assisted living and similar residential care communities. The vision for NSLTCP is to offer reliable, accurate, relevant and timely statistical information to support and inform long-term care services policy, research and practice.

NSLTCP replaces NCHS’ previous National Nursing Home Survey, National Home and Hospice Care Survey, and National Survey of Residential Care Facilities.

National Center for Health Statistics [US Centers for Disease Control and Prevention (CDC)]National
National Survey of Ambulatory Surgery (NSAS)
View Details...

The National Survey of Ambulatory Surgery (NSAS) is the only national study of ambulatory surgical care in hospital-based and freestanding ambulatory surgery centers (ASCs). Efforts are now underway to include ambulatory surgery centers in the National Hospital Ambulatory Medical Care Survey (NHAMCS). The NHAMCS website (http://www.cdc.gov/nchs/ahcd.htm) provides more information on the efforts.

CDC National Center for Health StatisticsNational
National Survey of Children with Special Health Care Needs
View Details...

The National Survey of Children with Special Health Care Needs (NS-CSHCN) takes a close look at the health and functional status of children with special health care needs in the U.S.—their physical, emotional and behavioral health, along with critical information on access to quality health care, care coordination of services, access to a medical home, transition services for youth, and the impact of chronic condition(s) on the child’s family.

The survey provides a broad range of information about the health and well-being of CSHCN collected in a standardized manner that allows comparisons across states as well as comparisons with the nation. It also serves to complement the National Survey of Children’s Health (NSCH) by providing in-depth data on the unique health experiences of children with special health care needs (CSHCN).

CDC National Center for Health StatisticsNational
National Survey of Children's Health
View Details...

The National Survey of Children’s Health (NSCH) touches on multiple, intersecting aspects of children’s lives. The survey includes physical and mental health status, access to quality health care, as well as information on the child’s family, neighborhood and social context.

The survey provides a broad range of information about children’s health and well-being collected in a standardized manner that allows comparisons across states as well as comparisons to the nation. It also serves to complement the National Survey of Children with Special Health Care Needs (NS-CSHCN) by providing data on the health of the general U.S. child population.

CDC National Center for Health StatisticsNational
National Survey of Residential Care Facilities
View Details...

National Survey of Residential Care Facilities (NSRCF)—national probability sample survey of residential care facilities with four or more beds—collected data on residential care providers, their staffs and services, and their current residents.

Included are residential care facilities; assisted living residences; board and care homes; congregate care; enriched housing programs; homes for the aged; personal care homes; and shared housing establishments that are licensed, registered, listed, certified, or otherwise regulated by a state. NSRCF is designed to produce national estimates of these places and their residents.

CDC National Center for Health StatisticsNational
State and Local Area Integrated Telephone Survey (SLAITS)
View Details...

The State and Local Area Integrated Telephone Survey (SLAITS) collects important health care data at State and local levels. This data collection mechanism was developed by the National Center for Health Statistics (NCHS) of the Centers for Disease Control and Prevention (CDC) and is comprised of 11 survey modules. It supplements current national data collection strategies by providing in-depth State and local area data to meet various program and policy needs in an ever-changing health care system. The surveys focus on selected topics that include; (Iowa and Washington State, data collected 1997) Child Well-Being and Welfare (Texas and Minnesota, data collected 1998-99), National Survey of Early Childhood Health (NSECH) (National Sample, data collected 2000), National Asthma Survey (NAS) (National Sample and four State samples, data collected 2003), National Survey of Adoptive Parents (NSAP) (National sample, data collected 2007), Survey of Adult Transition and Health (SATH) (Follow-back sample, data collected 2007), Influenza Vaccination Module for Children (IVMC) (National and State samples, data collected 2007), National Survey of Adoptive Parents of Children with Special Health Care Needs (NSAP-SN) (National sample, data collected 2008), Survey of Pathways to Diagnosis and Services (National sample, data collected 2011), National Survey of Children in Nonparental Care (New) (National sample, data collected 2013), National Survey of the Diagnosis and Treatment of ADHD and Tourette Syndrome (New) (National sample, data collected 2014).

State and Local Area Integrated Telephone Survey (SLAITS) [US Centers for Disease Control and Prevention (CDC) - National Center for Health Statistics (NCHS)]State & Local Area
The Third National Health and Nutrition Examination Survey (NHANES III)
View Details...

The Third National Health and Nutrition Examination Survey (NHANES III), 1988-94, is of primary interest to researchers interested in analyzing historical data on demographic, socioeconomic, dietary, and health-related questions and medical, dental, and physiological measurements. More current data on these topics is available from the ongoing NHANES survey.

CDC National Center for Health StatisticsNational
U.S. Alcohol EpidemiologicNational Longitudinal Alcohol Epidemiology Survey (NLAES)
View Details...

The National Longitudinal Alcohol Epidemiologic Survey (NLAES) is a multipurpose survey designed to collect longitudinal data on the prevalence of alcohol abuse and dependence associated with disabilities. Data collected include detailed measures of alcohol consumption and patterns of use; consequences of alcohol use' other drug use and associated disorders; other psychiatric disorders; other medical problems; detailed income from a variety of different sources for use in assessing the economic impact of alcohol disorders; treatment utilization; and awareness of alcohol warning labels.

NIH National Institute on Alcohol Abuse and Alcoholism (NIAAA)National
National Longitudinal Study of Adolescent HealthNational Longitudinal Study of Adolescent Health (Add Health)
View Details...

Initiated in 1994 and supported by five program project grants from the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) with co-funding from 23 other federal agencies and foundations, Add Health is the largest, most comprehensive, nationally-representative longitudinal survey of adolescents ever undertaken. Beginning with an in-school questionnaire administered to a nationally representative sample of students in grades 7-12, the study followed up with a series of in-home interviews conducted in 1995, 1996, 2001-02, 2008, and 2016-18. Add Health participants are now full-fledged adults, aged 33-44, and will soon be moving into midlife. Over the years, Add Health has added a substantial amount of additional data for users, including contextual data on the communities and states in which participants reside, genomic data and a range of biological health markers of participants, and parental survey data.

National Institutes of Health (NIH)National
National Longitudinal Survey of YouthNational Longitudinal Survey of Youth (NLSY79 and NLSY97)
View Details...

The National Longitudinal Surveys (NLS) are a set of surveys designed to gather information at multiple points in time on the labor market activities and other significant life events of several groups of men and women.

1) National Longitudinal Survey of Youth 1997 (NLSY97) (http://www.bls.gov/nls/nlsy97.htm)
2) National Longitudinal Survey of Youth 1979 (NLSY79) (http://www.bls.gov/nls/nlsy79.htm)
3) NLSY79 Children and Young Adults (http://www.bls.gov/nls/nlsy79ch.htm)
4) National Longitudinal Surveys of Young Women and Mature Women (NLSW) (http://www.bls.gov/nls/nlsorig.htm)
5) National Longitudinal Surveys of Young Men and Older Men (http://www.bls.gov/nls/oldyoungmen.htm).

National Longitudinal SurveysNational
The Substance Abuse and Mental Health Services Administration (SAMHSA)National Survey on Drug Use and Health (NSDUH)
View Details...

The National Survey on Drug Use and Health (NSDUH) is the primary source of information on the prevalence, patterns, and consequences of alcohol, tobacco, and illegal drug use and abuse in the general U.S. civilian non institutionalized population, age 12 and older.

Substance Abuse and Mental Health Services Administration (SAMHSA)National
Drug Abuse Warning Network (DAWN) [Substance Abuse and Mental Health Services Administration (SAMHSA)]
View Details...

The Drug Abuse Warning Network (DAWN) is a public health surveillance system that monitors drug-related hospital emergency departments (EDs) and drug-related deaths investigated by medical examiners and coroners (MEs).

Drug Abuse Warning Network (DAWN) [Substance Abuse and Mental Health Services Administration (SAMHSA)]National
Arkansas Department of Human ServicesAnnual Statistical Reports [Arkansas Department of Human Services (DHS)]
View Details...

The Arkansas Department of Human Services (DHS) listing of annual statistical reports for all divisions, including Medicaid, from state fiscal year 2003 through state fiscal year 2013.

Annual Statistical Reports [Arkansas Department of Human Services (DHS)]Arkansas
The Society of Thoracic SurgeonsCardiothoracic Surgery Research Data [Society of Thoracic Surgeons (STS) National Database]
View Details...

The Society of Thoracic Surgeons (STS) National Database is the premier clinical data registry for cardiothoracic surgery. It includes three component parts: the Adult Cardiac Surgery Database, the General Thoracic Surgery Database, and the Congenital Heart Surgery Database. This wealth of information is available to physicians, researchers, and the healthcare industry to use for quality improvement, and in comparative effectiveness research, clinical trials, post-market surveillance, and basic and translational research.

Society of Thoracic Surgeons (STS) National DatabaseU.S.
Tufts Medical CenterCost-Effectiveness Analysis Registry [Center for the Evaluation of Value and Risk in Health (CEVR) - Tufts Medical Center]
View Details...

The Cost-Effectiveness Analysis (CEA) Registry is a comprehensive database containing detailed information on more than 8,650 standardized cost-effectiveness ratios and more than 11,800 utility weights published in the peer-reviewed literature. It details studies published from 1976 through 2012 and is regularly updated.

These studies estimate health benefits (in terms of quality-adjusted life-years (QALYs)) and incremental costs for a wide range of health and medical interventions, thus offering a means to identify promising opportunities to invest the nation’s health care resources.

Center for the Evaluation of Value and Risk in Health (CEVR) [Tufts Medical Center]National
DARTNet InstituteDARTNet Institute Datasets
View Details...

The DARTNet Institute is a rapidly growing collaboration of practice-based research networks that are building a national collection of data from electronic health records, claims, and patient-reported outcomes. The networks blend quality improvement, effectiveness, and translational research with a data driven-learning system. The learning system includes advanced performance measures and assistance with the development and deployment of clinical decision support systems.

DARTNet is a federated network of electronic health record data and other clinical information from multiple organizations across the United States. A federated network is a collection of databases that reside in multiple member practices and that are linked through a secure Web-based system so they can be searched and queried as one large database while maintaining privacy and confidentiality of patient data.

The nine distinct research networks that make up DARTNet Institute offer access to approximately 12.5 million patient visits per year, 5 million patient lives, and approximately five billion data points.

DARTNet InstituteGeographic representation based on nine primary care research networks.
U.S. Food and Drug Administration (FDA)Drug Approvals and Databases [U.S. Food and Drug Administration (FDA)]
View Details...

Drug-related databases from FDA; information on drug approvals.

Drug Approvals and Databases [U.S. Food and Drug Administration (FDA)]National
FDA Adverse Event Reporting System (FAERS) [U.S. Food and Drug Administration (FDA)]
View Details...

The FDA Adverse Event Reporting System (FAERS) is a database that contains information on adverse event and medication error reports submitted to FDA. The database is designed to support the FDA's post-marketing safety surveillance program for drug and therapeutic biologic products. The informatic structure of the FAERS database adheres to the international safety reporting guidance issued by the International Conference on Harmonisation (ICH E2B1). Adverse events and medication errors are coded to terms in the Medical Dictionary for Regulatory Activities (MedDRA)2 terminology.

FDA Adverse Event Reporting System (FAERS) [U.S. Food and Drug Administration (FDA)]National
Inter-university Consortium for Political and Social Research (ICPSR)Inter-university Consortium for Political and Social Research (ICPSR)
View Details...

Inter-university Consortium for Political and Social Research (ICPSR) provides leadership and training in data access, curation, and methods of analysis for a diverse and expanding social science research community.

Inter-university Consortium for Political and Social Research (ICPSR)National
Long-term Care: Facts on Care in the USLong-term Care: Facts on Care in the US (LTCfocus)
View Details...

LTCFocUS.org website hosts data regarding the health and functional status of nursing home residents, characteristics of care facilities, state policies relevant to long term care services and financing, and data characterizing the markets in which facilities exist and, in the future, we plan to expand to include information about other sectors of the long-term care system. These data will allow researchers to examine the relationship between state policies and local market forces and the quality of long-term care. Researchers can use this website to examine care processes and resident outcomes within the context of their local markets and regulatory practices. Policymakers can use the information to shape state and local guidelines, policies, and regulations that promote high-quality, cost-effective, equitable care to older Americans.

Data Sources: Online Survey Certification And Reporting (OSCAR), Minimum Data Set (MDS), State Policy Data, Area Resource File (ARF), and Residential History File (RHF).

Long-term Care: Facts on Care in the US (LTCfocus) [Alpert Medical School at Brown University]National
IBM® MarketScan® ResearchMarketscan Research Databases
View Details...

IBM® MarketScan® Research Databases consist of three core claims databases, a hospital discharge database and an electronic health record (EHR) database. They also incorporate several linked databases, data sets and files that combine claims data with other patient and employee data.

Truven Health AnalyticsNational
Tufts Medical CenterCenter for the Evaluation of Value and Risk in Health (CEVR) - Tufts Medical Center
View Details...

CEVR is a leader on issues pertaining to value, cost-effectiveness, and risk tradeoffs in health care decisions. We inform national clinical and public health policy issues through our analysis of the benefits, risks and costs of strategies to improve health and health care. We undertake scientific research projects, advance methods development for the field, train the next generation of practitioners and users, and work with policymakers worldwide to develop reasoned policy solutions.

Center for the Evaluation of Value and Risk in Health (CEVR) [Tufts Medical Center]National
Children's Hospital AssociationPHIS+: Augmenting the Pediatric Health Information System (PHIS) with Clinical Data [Children's Hospital Association]
View Details...

The objective of the PHIS+ project is to augment the Pediatric Health Information System (PHIS) with clinical data for conducting comparative effectiveness research (CER).

The PHIS database is a comprehensive pediatric database operated by Children’s Hospital Association (the Association) containing administrative and financial details for more than six million patient cases from 44 leading children’s hospitals.

The augmented database, called PHIS+, contains clinical data such as laboratory, microbiology and radiology results obtained in multiple sites of care (inpatient, outpatient, emergency department and day surgery). PHIS+ provides a rich clinical data source for academic clinicians to conduct comparative effectiveness research studies.

PHIS+: Augmenting the Pediatric Health Information System (PHIS) with Clinical Data [Children's Hospital Association]National
Prostate, Lung, Colon, Ovarian (PLCO) Cancer Screening TrialProstate, Lung, Colon, Ovarian (PLCO) Cancer Screening Trial
View Details...

The Prostate, Lung, Colorectal and Ovarian (PLCO) Cancer Screening Trial is a large population-based randomized trial designed and sponsored by the National Cancer Institute (NCI) to determine the effects of screening on cancer-related mortality and secondary endpoints in men and women aged 55 to 74. The screening component of the trial was completed in 2006. Participants are being followed and additional data will be collected through 2015. In 2011, the follow up was streamlined and began being moved from the Screening Centers to the Centralized Data Coordinating Center (CDCC). Numerous epidemiologic and ancillary studies are also underway to answer related crucial questions.

The Cancer Data Access System (CDAS) (https://biometry.nci.nih.gov/cdas/) is a web portal that facilitates access to PLCO data other than the biospecimens in EEMS. CDAS provides extensive documentation including a summary of the trial, a description of the data collected, and a searchable list of research projects under way with the data and published results. Analytic data sets for prostate, lung, colorectal, ovarian, breast, biliary, bladder, endometrial, glioma, head & neck, hematopoietic, liver, male breast, melanoma, pancreas, renal, thyroid, and upper GI are available with nearly all the study data available for screening, incidence and mortality analyses.

This extensive PLCO data base has been organized to focus on 18 cancer sites of interest, as well as available questionnaires, ancillary studies, and lab results.

Prostate, Lung, Colon, Ovarian (PLCO) Cancer Screening Trial [National Institutes of Health (NIH) - National Cancer Institute (NCI) - Division of Cancer Prevention (DCP)]Geographic representation by 10 PLCO Centers.
Autism Speaks Autism Treatment NetworkATN Patient Registry Database
View Details...

The AS ATN is the first bi-national network of hospitals, physicians, researchers, and families at 12 centers across the United States and Canada. We are working together to develop the most effective approach to medical care for children and adolescents affected by autism. The Network’s goal is to provide comprehensive, high-quality care by teams of healthcare professionals who understand autism spectrum disorders and excel at treating associated medical conditions.

ATN Patient Registry DatabaseNational
American College of SurgeonsNational Trauma Data Bank [American College of Surgeons]
View Details...

The National Trauma Data Bank® (NTDB) is the largest aggregation of trauma registry data ever assembled. The goal of the NTDB is to inform the medical community, the public, and decision makers about a wide variety of issues that characterize the current state of care for injured persons.

NTDB offers several Research Data Set (RDS) products:

• The NTDB RDS contains all records sent to NTDB for each admission year. Use this dataset to explore data on pediatric patients, or Level III, IV, V, or undesignated trauma centers. If you are looking at small patient cohort, such as a specific injury or procedure, you may want to use the NTDB RDS because the overall number of patients is much larger. This data set is not appropriate for making national estimates or yearly comparisons.

• The NSP RDS provides national estimates for adult patients seen in Level I and II trauma centers. These datasets contain weighted data for up 100 randomly selected trauma centers. The NSP should be used when it’s necessary to make inferences to the population of patients seen in US trauma centers, and when you will be making comparisons across admission years. The NSP should not be used to examine specific injuries or procedures.

National Trauma Data Bank [American College of Surgeons]National
American Hospital Association (AHA)American Hospital Association (AHA) Annual Survey Database
View Details...

AHA Data represents information that is directly provided by more than 6,200 hospitals and 400 health care systems. Our data covers an array of data points, including demographics, operations, service line, staffing, CEO/President, expenses, physician organization structures, beds, utilization, population health, and more.

American Hospital AssociationNational
Multiple States
American Hospital Association (AHA) Data and Directories — Hospital and Health System Data Resources
View Details...

AHA Data represents information that is directly provided by nearly 6,300 hospitals and more than 400 health care systems. Our data warehouse covers an array of data points, including demographics, operations, service line, staffing, c-suite information, expenses, physician organization structures, beds, utilization and more. Historical data sets are available for many of these tools.

American Hospital Association (AHA) Data and Directories — Hospital and Health System Data ResourcesNational
Center for Studying Health System Change (HSC)Community Tracking Study -- Household Survey
View Details...

To track changes in health care access, utilization, coverage, costs, and other experiences with the health care system the Center for Studying Health System Change (HSC) periodically conducts a nationally representative household survey of the civilian, non-institutionalized population.

Household Survey topics include type of health insurance coverage, utilization of medical services (e.g., number of physician visits and number of emergency room visits), usual source of care, perceived quality of care, health status, employer health insurance offerings, problems paying medical bills, consumer-directed health care, health information-seeking, care coordination and assessments of care quality for chronic conditions.

Center for Studying Health System Change (HSC)National
Community Tracking Study -- Physician Survey
View Details...

To provide an in-depth look at the issues and challenges physicians face in the rapidly changing health care system, HSC conducts nationally representative surveys of non-federal physicians who spend at least 20 hours a week in direct patient care.

The Community Tracking Study (CTS) Physician Survey data collection was focused primarily on physicians practicing in 60 randomly selected U.S. communities, allowing analyses to be conducted at both the national and community level. In 2008, the CTS Physician Survey was replaced by the HSC Health Tracking Physician Survey. The new survey name reflects the substitution of the clustered 60-site sample design with a more efficient national sample.

Both the CTS Physician Surveys and the HSC 2008 Health Tracking Physician Survey cover a wide variety of physician and practice dimensions, from basic physician demographic information, practice organization and career satisfaction to insurance acceptance, compensation arrangements, information technology use and charity care provision. The 2008 survey also includes questions on care management, quality reporting, care coordination, malpractice concerns, ownership of hospitals and medical equipment, and greater detail on use of information technology.

Center for Studying Health System Change (HSC)National
Robert Wood Johnson Foundation (RWJFHealth and Medical Care Archive (HMCA) [Robert Wood Johnson Foundation (RWJF)]
View Details...

The Health and Medical Care Archive (HMCA) is the data archive of the Robert Wood Johnson Foundation (RWJF) , the largest philanthropy devoted exclusively to health and health care in the United States. Operated by the Inter-university Consortium for Political and Social Research (ICPSR) at the University of Michigan with funding from RWJF, HMCA preserves and disseminates data collected by selected research projects funded by RWJF and facilitates secondary analyses of the data. The data collections in HMCA primarily includes large-scale surveys of the American public about public health, attitudes towards health reform, and access to medical care; surveys of health care professionals and organizations, public health professionals, and nurses; evaluations of innovative programs for the delivery of health care, and many other topics and populations of interest. Our goal is to build a culture of health by increasing the understanding of health and health care and the factors that contribute to health in the United States through secondary analysis of RWJF-supported data collections.

Health and Medical Care Archive (HMCA) [Robert Wood Johnson Foundation (RWJF)]National
National Survey of America's FamiliesNational Survey of America's Families (NSAF)
View Details...

The National Survey of America's Families (NSAF) is part of The Urban Institute's Assessing the New Federalism (ANF) multi-year research project. Its purpose is to track the effects of recent federal policy changes decentralizing many social programs from the federal government to the states, focusing primarily on health care, income security, job training, and social services. In collaboration with Child Trends, researchers from the Urban Institute monitor program changes and fiscal developments, along with changes in the well-being of children and families. The NSAF is a household survey that can be used to produce cross-sectional estimates for a wide variety of child, adult and family well-being indicators at the state level for 13 states and the nation as a whole. Data collection for the NSAF was carried out in 1997, 1999 and 2002 by Westat.

Urban InstituteMultiple States
Arkansas Department of Health (ADH)Arkansas Birth Records [Arkansas Department of Health (ADH)]
View Details...

Arkansas Vital Records has birth records dating from February 1, 1914 through the present. There are a limited number of birth records available prior to 1914. Those records were filed with Arkansas Vital Records after 1914. We also have original copies of some Little Rock and Fort Smith births dating from 1881.

Statewide Vital Records/Certificates [Arkansas Department of Health (ADH)]Arkansas
Arkansas Cancer Registry [Arkansas Department of Health (ADH)]
View Details...

Cancer is the second leading cause of death behind heart disease in Arkansas. The most frequently diagnosed cancers in the state include lung, colorectal, breast cancer among women, and prostate cancer among men. Due to the increasing burden, it will be important for the Arkansas Central Cancer Registry to collect cancer information for surveillance, to conduct cancer investigations, to assist initiatives for early detection and prevention, and to supply data for research and policy endeavors. Since 1996, through funding from the National Program of Cancer Registry (NPCR) at the Centers for Disease Control and Prevention (CDC), the ACCR has been collecting population-based cancer incidence data among residents in Arkansas. The ACCR collects high quality and complete data, and has been consistently certified as Registry of Distinction by NPCR and a gold-standard registry designated by the North American Association of Central Cancer Registries (NAACCR).

Health Statistics Branch (HSB) [Arkansas Department of Health (ADH)]Arkansas
Arkansas Death Records [Arkansas Department of Health (ADH)]
View Details...

Arkansas Vital Records has death records dating from February 1, 1914 through the present. There are a limited number of death records available for deaths occurring between 1881 and 1914 in Little Rock and Fort Smith. The Arkansas History Commission keeps an alphabetical listing of deaths in Arkansas dating from 1914 through 1949, but they do not have the actual death records.

Statewide Vital Records/Certificates [Arkansas Department of Health (ADH)]Arkansas
Arkansas HIV/AIDS/STD Registry [Arkansas Department of Health (ADH)]
View Details...

The HIV/AIDS Surveillance Program, at the Arkansas Department of Health, is responsible for monitoring the HIV/AIDS epidemic in Arkansas in order to provide information to guide policy decisions, target resources, and help to evaluate services and prevention activities. This involves the collection, maintenance, and analysis of name-based HIV/AIDS information. All state HIV/AIDS surveillance systems are also responsible for maintaining the standards set by the Centers for Disease Control and Prevention (CDC), as outlined in the 2006 Technical Guidance for HIV/AIDS Surveillance Programs, Volume III.

Health Statistics Branch (HSB) [Arkansas Department of Health (ADH)]Arkansas
Arkansas Immunization Information System - Arkansas WebIZ [Arkansas Department of Health (ADH)]
View Details...

Immunization Information Systems (IIS) are confidential, population-based, computerized databases that record all immunization doses administered by participating providers to persons residing within a given geopolitical area. These systems provide meaningful, near real-time data to support both clinical decision making, as well as the public health system. At the point of clinical care, an IIS can provide consolidated immunization histories for use by a vaccination provider in determining any needed client vaccinations. At the population level, an IIS provides aggregate data on vaccinations for use in surveillance and program operations, and in guiding public health action with the goals of improving vaccination rates and reducing vaccine-preventable diseases.

IIS are designed to provide assistance to immunization programs in identifying populations at high risk for vaccine-preventable diseases and target interventions and resources more effectively and efficiently. IIS combine immunization information from different sources into a single record and serve as official documentation that the individual can use to meet school, day care, and employment vaccination requirements.

Statewide Immunization Data [Arkansas Department of Health (ADH)]Arkansas
Arkansas Stroke Registry [Arkansas Department of Health (ADH) - American Heart Association (AHA)]
View Details...

The Arkansas Department of Health, in collaboration with the American Heart Association, manages a stroke registry by collecting real time data on stroke treatment from hospitals serving Arkansans.

Health Statistics Branch (HSB) [Arkansas Department of Health (ADH)]Arkansas
Arkansas Trauma Registry (ATR) [Arkansas Department of Health (ADH)]
View Details...

The Arkansas Trauma Registry (ATR) is designed to develop and maintain a statewide trauma data collection and evaluation system (ref. ACT 559, The Trauma System ACT, Section 6a). The Arkansas Trauma Registry will provide the data to identify and drive process improvement activities that will reduce morbidity and mortality from traumatic events.

A trauma registry is a data collection system composed of uniform data elements that describe the injury event, demographics, pre-hospital information, diagnosis, care and outcomes of injured patients. The purpose of the trauma registry is to obtain, code, and sort this information for analysis, and reporting individual and aggregate results. Registry data is used for performance improvement, medical research, statistical analysis, critical pathways, care coordination, epidemiological and injury prevention.

Health Statistics Branch (HSB) [Arkansas Department of Health (ADH)]Arkansas
County Health Fact Sheets [Arkansas Department of Health (ADH)]
View Details...

The Arkansas Department of Health (ADH) is a centralized public health system with four main Centers and the Public Health Laboratory that work with 94 local health units to provide clinical preventive services, administer public health programs, and issue licenses and certifcates. Everything at ADH is done because we believe that communities can be healthier and safer, and people can live longer. Below are fact sheets for every county in Arkansas.

Health Statistics Branch (HSB) [Arkansas Department of Health (ADH)]Arkansas
Arkansas Pregnancy Risk Assessment Monitoring System (PRAMS) [Arkansas Department of Health (ADH)]
View Details...

The Pregnancy Risk Assessment Monitoring System (PRAMS) is a joint project of the Arkansas Department of Health – Center for Health Statistics and the U.S. Centers for Disease Control and Prevention (CDC). Developed by CDC, PRAMS is an ongoing, state-and population-based survey designed to collect information on self-reported maternal behaviors and experiences that occur before, during, and shortly after pregnancy among women who deliver a live-born infant. A questionnaire is mailed to a sample of mothers that is randomly selected from state birth certificate records. Responses are accumulated during the calendar year, combined with birth certificate data, and then weighted to be representative of all mothers who had a live-born infant in the state. Participation in the survey is entirely voluntary.

Health Statistics Branch (HSB) [Arkansas Department of Health (ADH)]Arkansas
Arkansas Department of Health

Arkansas Hospital Discharge Data System [Arkansas Department of Health (ADH)]
View Details...

The Arkansas Hospital Discharge Data System is one of the most important tools for addressing a broad range of health policy issues. Act 670 of 1995, A.C.A. 20-7-201 et seq., requires all hospitals licensed in the state of Arkansas to report information on inpatient discharges. “All hospitals” include general medical surgical (GMS) hospitals, Critical Access Hospitals (CAH), long-term acute care hospitals (LTAC), psychiatric and rehabilitation hospitals. The Act also specifically prohibits the release of any information from the collected data that identifies, or could be used to identify, any individual patient, provider, institution or health plan.

Beginning in 1996 with very limited data, the system has grown to include virtually all discharges with a stay of more than one day. Information reported includes demographics such as date of birth, gender, race and ethnicity. Clinical information includes dates of service, discharge status, diagnoses, procedures and injury data. Charges are included, as well.

Staff edit and complete these data, then combine data from all the hospitals into a dataset for each calendar year. Staff then are able to access information for policy, planning and research applications for the submitting hospitals and many other interested parties. The de-identified datasets are shared with other states, for services provided in Arkansas to residents of that state, and with the national HCUP dataset.

Statewide Hospital Discharge Data [Arkansas Department of Health (ADH)]Arkansas
The Arkansas Prescription Drug Monitoring Program (AR PDMP) [AR Dept of Health]
View Details...

The Arkansas Prescription Drug Monitoring Program (AR PDMP) is an electronic database of all the controlled prescriptions dispensed at Arkansas pharmacies, mail order pharmacies delivered into Arkansas, and other dispensaries such at a veterinary or medical clinics. Pharmacies are required to report the dispensation of a controlled prescription next business day, while veterinary clinics are required to report every 30 days. A controlled substance is a substance that is scheduled II – V on the Arkansas list of controlled substances. Examples of medications on the controlled substance list are hydrocodone, morphine, alprazolam, zolpidem and methylphenidate.

Arkansas Prescription Monitoring Program (APMP) [AR Dept of Health]Arkansas
Arkansas State Health Alliance for Records Exchange (SHARE)
View Details...

The State Health Alliance for Records Exchange (SHARE) is Arkansas’s only statewide Health Information Exchange (HIE). SHARE is a product of the Office of Health Information Technology which is part of the Arkansas Department of Health. SHARE securely connects doctors, nurses, pharmacists and other health care professionals. It allows health care professionals to view a complete patient medical history so they can have the information they need to provide the best care possible.

Arkansas State Health Alliance for Records Exchange (SHARE)Arkansas
UAMS College of Medicine LogoUAMS College of MedicineUniversity of Arkansas for Medical Sciences
Mailing Address: 4301 West Markham Street, Little Rock, AR 72205
Phone: (501) 686-7000
  • Facebook
  • Twitter
  • Instagram
  • YouTube
  • LinkedIn
  • Pinterest
  • Disclaimer
  • Terms of Use
  • Privacy Statement

© 2023 University of Arkansas for Medical Sciences